Cherry helps her father tie his shoelaces and reach food on the top shelf
These touching photographs capture the special bond between a dwarf father and his daughter.
Richard
Willis, from North Frodingham, Yorkshire, was born with diastrophic
dysplasia, a rare form of dwarfism that stifles growth and leaves joints
malformed.
As
a result of the condition, the 46-year-old, who is 3ft 8in tall,
suffers from extreme arthritis and double scoliosis and now needs a
specialised wheelchair to support his movement.
But his life is made easier by his four-year-old daughter, Cherry, who helps her father tackle everyday tasks.

Helping hand: Cherry is happy to help her father tie his shoelaces, as he finds it too painful to do for himself
Special bond: Richard gives Cherry a lift to reach their yogurts on the top shelf of the fridge. Right, together
Tiny: Cherry (pictured) was born nine weeks early in 2011, at a time when Mr Willis could not walk properly
The
schoolgirl, who did not inherit her father's condition, ties his
shoelaces, washes the dishes and even climbs up on him to reach food on
the top shelf in the fridge.
And
when Mr Willis heads out on his hand-trike cycle, a specialised
wheelchair he needs to move around, Cherry pedals along beside him on
her bike.
Mr Willis said they share a 'unique' relationship and that he couldn't be more proud of his daughter.
We're like a little double act. We do everything together and I don't think we could be any closer,' he said.
'She
crouches down to tie my shoe laces because it's painful for me to do it
myself and she climbs up on me every day to take two yoghurts from the
top shelf of the fridge for us to eat.
'When
she plays with her miniature baking set, it's the perfect height for me
so it even helps when she's playing with her toys. We even wash the
dishes together - it's a real tag-team effort!'
Family: Mr Willis' wife, Charli, works part-time for the council while he stays home with Cherry
Close: Mr Willis, who took medical retirement in 2006, said his daughter's birth was like a 'breath of fresh air'
Quality time: Mr Willis said they share a 'unique' bond and that he couldn't be more proud of his daughter
Mr
Willis, who took medical retirement in 2006, said his daughter's birth
was like a 'breath of fresh air' during a time in his life when he was
recovering from a number of major operations.
WHAT IS DISATROPHIC DWARFISM?
Diastrophic dysplasia, which is also known as disastrophic dwarfism, is a rare disorder of cartilage and bone development.
The
range and severity of symptoms can vary greatly, but is often
characterised by short stature and unusually short arms and legs;
abnormal development of bones and joints; and progressive abnormal
curvature of the spine.
Mr Willis suffers from extreme arthritis and double scoliosis of the spine.
It is estimated that roughly one in 100,000 newborns is affected with the condition.
About half of infants with diastrophic dysplasia are born with an opening in the roof of the mouth.
He
claims the double scoliosis of his spine caused by his condition has
altered his walking position and subsequently a string of ongoing back
problems.
Mr
Willis said his movement has been permanently impaired since he was
forced to have surgery on his left leg in 2006, and his right leg and
shoulder in 2008.
When Cherry was born he could not walk properly.
'I've had some tough times but the birth of my daughter was like a breath of fresh air,' he said.
'Because
of the operations I had to have it felt a little bit like I was
starting out again because I had to teach myself to walk and all sorts
but Cherry being around made it so special.
'When
she was learning to crawl, I was just learning how to walk again so it
really is like we've done everything alongside each other. It's a unique
bond, there's no other way to put it.'
Mr Willis spent most of his day with Cherry while his wife, Charli, worked part time at the council.
But Cherry started school last week so the pair will now have less time together.
Playful: Mr Willis said his movement
has been permanently impaired since he was forced to have surgery on his
left leg in 2006, and his right leg and shoulder in 2008. Pictured,
with daughter Cherry and wife Charli
Staying strong: Mr Willis, pictured with Cherry and Charli on holiday, said he had faced some tough times
Support: When Mr Willis heads out on his specialised wheelchair Cherry pedals along beside him on her bike
He said: 'I'm really proud of her and she seems to have really taken to school life.
'Cherry's a really confident little girl, probably because of how much time she's spent in adult company at such a young age.
'She's really proud of her dad and there's no issue at all with the other children just because I'm a dwarf.
'I don't think she could have settled in any better than she has, she's a lovely girl and we're so proud of her.
Challenges: When Cherry was learning to crawl, her father was teaching himself how to walk again
Mr and Mrs Willis on their wedding day, left. Right, an X-ray of Mr Willis' legs with titanium joints
Cherry started school last week so the pair (pictured together )will now have less time together
Source : Daily Mail , UK
No comments:
Post a Comment