! STOP BENDING NOW !

Sunday, 30 October 2016

Teenager's desperate bid to save herself from spine so twisted it's crushing her to death from the INSIDE

Samantha Harris, 18, needs surgery urgently to prevent her twisted spine from crushing her internal organs

Samantha Harris who suffers from scoliosis
Samantha Harris was diagnosed with scoliosis aged just seven

A teenager needs emergency surgery to save herself from a spine that is to twisted it is crushing her to death from the inside.
Samantha Harris has been suffering from scoliosis - abnormal curvature of the spine - since she was seven-years-old.


She says she was initially given a back brace but stopped wearing it because she was bullied at school.

The problem got worse but Samantha says she was unable to have surgery because she was underweight.

  Samantha Harris who suffers from scoliosis
An x-ray shows the astonishing extent to which Sam's spine is twisted
Sam, who lives in Brisbane, Australia, could have had an operation when she gained weight but then suffered anxiety.
Now aged 18, time is running out.

An astonishing x-ray she posted on a fundraising page shows Sam's spine is now bent at 112 degrees.

Without surgery, it will eventually begin to crush her internal organs until she dies.


Sam, who now struggles to walk more than 100metres, told the Courier-Mail: "The top of my spine is bent one way and the bottom of my spine is bent the other way.


"It’s starting to crush my lungs, so I only have 30 per cent lung capacity in one of them.

"If I don’t get this surgery, I will die. It’s scary, but I’m not going to let it happen."

Sam is now trying to raise around £12,000 for spinal fusion surgery.


Link : https://www.gofundme.com/samanthaharris



Source : Mirror , 15th Oct 2016

Saturday, 29 October 2016

Physical exercises can keep back problems at bay: Doctors

Children are at a higher risk of developing scoliosis, an abnormal lateral curvature of the spine, caused due to wrong posture.
To mark the World Spine Day (WSD) on Sunday, doctors have called upon the citizens to know the importance of physical activity, and also to improve posture as part of good spinal health.

Orthopaedic surgeon, Dr Vivek Srivastava, said, "Research says that incorrect posture and inactivity are prime contributors to the development of spinal disorders."


Majority of adolescents who maintain wrong postures while cycling, studying and working, usually complain of back pain and spinal disorders, added Srivastava.

Dr Sadanand Shukla said with the advancements in technology and availability of latest electronic gadgets, people in all age-groups fail to pay attention towards maintaining right postures. For the purpose, parents must keep an eye on their wards and make sure they maintain correct posture while working.

Experts dealing with spinal problems said one must be very careful while driving, standing or sitting. "The best way to deal with the problem is to maintain the right posture," said experts. According to experts, physical exercises are a must to keep your spine healthy.


Source : TOI , 17th Oct 2016

Even with brace wear, patients with Risser stage 0 AIS were at risk for surgery


Results from this study demonstrated that despite brace wear, patients with Risser stage 0 adolescent idiopathic scoliosis were at risk of needing surgery.
Karol LA, et al. J Bone Joint Surg Am. 2016;doi:10.2106/JBJS.15.01313

____________________________________________________

Lori A. Karol, MD,
and colleagues prospectively identified 168 patients who were prescribed brace wear for adolescent idiopathic scoliosis. At the time they prescribed the brace, investigators determined patient age, sex, menarcheal status, curve magnitude, Risser sign and whether the triradiate cartilage was open or fused. Thermal monitors were used to measure patient compliance.

Lori A. Karol

Results showed 44.2% of patients at Risser stage 0; 6.9% at Risser stage 1; and 0% at Risser stage 2 had surgery or progression of their curves to a magnitude of greater than or equal to 50°. Investigators noted brace wear in patients at Risser stage 0 averaged 11.3 hours, while patients at Risser stage 1 and Risser stage 2 wore braces for 13.4 hours and 14.2 hours per day, respectively. There was no difference in the initial curve magnitude amongst the groups; however, more patients with Risser stage 0 progressed to surgery compared with patients who had either Risser stage 1 or stage 2 despite brace use.

According to researchers, 41.9% of patients at Risser stage 0 wore a brace greater than or equal to 12.9 hours per day and needed surgery. They found 10 patients in the Risser 0 group who had closed triradiate cartilage and who wore a brace for at least 18 hours per day did not need surgery. However, seven patients with Risser stage 0 with open triradiate cartilage and comparable brace wear needed surgery. Investigators found seven of the nine patients at Risser stage 0 who had open triradiate cartilage and wore their braces for a minimum of 12.9 hours daily and had curves smaller than 30° did not need surgery.

“Risser stage 0 patients should be prescribed a minimum of 18 hours of brace wear. Bracing should be initiated for curves of less than 30° in patients at Risser stage 0, especially those with open triradiate cartilage,” Karol and colleagues wrote. ‒ by Monica Jaramillo and Gina Brockenbrough, MA

Disclosure: Karol reports she is a board or committee member of Pediatric Orthopaedic Society of North America and receives publishing royalties, financial or material support from Saunders/Mosby-Elsevier.



Source : Healio, 19th Oct 2016

Saturday, 1 October 2016

'Second skin will give our little girl longer to live'

HOPE: Karlia Craig has dreams of becoming a mermaid or princess one day.
HOPE: Karlia Craig has dreams of becoming a mermaid or princess one day.   

CONFINED to a hospital bed almost 1000km from home, Karlia Craig is barely alive as her spine slowly crushes her lungs and heart. The little eight-year-old from Mackay is no stranger to struggle, having been diagnosed with multi-minnicore myopathy at birth, a rare congenital muscle disorder, she has gone from strength to strength trying to achieve a "normal" life. She had previously been able to attend a mainstream school with a support aid, enjoyed time spent playing with her older sister and had dreams of being a mermaid or a princess. Now however, after developing severe scoliosis (curvature of the spine), her health is deteriorating rapidly with a "second skin suit" her only hope for a prolonged life. "We had an emergency airlift to the Brisbane hospital two weeks ago and when we got here she nearly passed away," mum Coraley Craig said as she held back tears.


Coraley Craig, Celeste Medd, Karlia Craig, Danielle Tucker and Rachael Craig.
Coraley Craig, Celeste Medd, Karlia Craig, Danielle Tucker and Rachael Craig.



"I think she nearly gave up there for a little while, but she's doing much better at the moment. "Luckily her health has improved and we just came out of the intensive care unit yesterday. "The doctors have said though that if we don't get the second skin and try it out, it's not going to be long for her." Coraley is not unfamiliar with adverse predictions however, with doctors expecting Karlia to die during delivery. Even after birth, they anticipated she wouldn't live long and would not be able to walk or talk. It was when she was two that Coraley first detected her daughter's scoliosis, noticing strange appearances on the x-rays. The doctors recommended to wait and see how the condition developed, until finally she deteriorated enough to require a brace. By this time however it was too late, the brace couldn't stop the worsening of her condition.



Karlia Craig recovers after long periods of medical support in Brisbane.

Karlia Craig recovers after long periods of medical support in Brisbane.



From this point onwards Karlia has spent most of her life between a wheelchair and a walker, until her scoliosis worsened to the point where she could no longer touch the ground with both feet at the same time. Doctors now refuse to perform spinal surgery on Karlia as her lungs are unlikely to survive the multiple operations she will need, which leaves the second skin suit as her only option. A second skin suit is similar to a lycra suit but has an internal frame to support the wearer. For Karlia, the suit could slow down the progression of her scoliosis and hopefully prolong her life. The only barrier at the moment however is cost. Coraley is a full time carer and cannot afford the $2700, plus extras for fittings, for the second skin suit. Karlia's doctors have said she only has a month or two left before her condition is so extreme that even the suit will no longer be able to stop her spine from crushing her organs. It is for this reason Coraley is appealing to the public through a gofundme page to help raise money for the purchase of a suit, and hopefully many more years of life for Karlia. "I'd appreciate any help we can get for the second skin suit because it just means she could have a longer life with us as a family."

Donations can be made at gofundme.com/2avpz58. 
 
 
  

Source : Daily Mercury , 21st Sep 2016





Dr. Mike Albert performs 1st spine surgery with Band-LOK technology: 5 quick thoughts

A surgeon performed the first spine surgery using Band-LOK's pedicle-sparing polyester band spinal technology.
Here are five quick thoughts.

1. Mike Albert, MD, performed the spine surgery using Band-LOK technology at Dayton (Ohio) Children's Hospital.

2. The Band-LOK system uses polyester bands and instrumentation to treat bone pathologies, like scoliosis.

3. During the case, Dr. Albert used Band-LOK's Tether Clamp System for neuromuscular scoliosis measuring 90 degrees.  

4. Band-LOK received a U.S. patent for the technology in November 2015.

5. Band-LOK is a Waxhaw, N.C.-based developer of orthopedic technologies. The company marketed the technology through a licensing agreement with Warsaw, Ind.-based OrthoPediatrics.

"The case went exceptionally well; demonstrating the versatility, simplicity and power of the band to correct severe spinal deformities. The system performed flawlessly, gradually correcting this large spinal deformity with no bone or band failures," said Dr. Albert.




Source : Beckers Spine , 20th Sep 2016 

Scoliosis surgery at 70 years old: Is it safe? 5 things to know

A new study published in Clinical Spine Surgery examines acute complications among spinal deformity surgical patients who are 70 years old or older.

The researchers examined 20 patients who were 76.6 years old on average and followed them for six months. The patients underwent instrumented posterior spinal fusions and the same surgeon performed all procedures. The researchers found:

1. The patients reported four comorbidities on average and their American Society of Anesthesiologists score was 2.7.

2. The weight comorbidity index was low at 1.05 with a range of 0 to four.

3. The patients underwent at least six-level fusions; the average fusion was 10.75 levels with a range of six to 15 levels fused.

4. There were complications in 95 percent of the patients; nine of those complications were major in seven patients.

5. The article authors concluded spinal deformity surgery poses risks regardless of the age, however the risks are "believed to increase" as patients get older and the procedure becomes more complex.

"Our results show that, although the risks of major complications are significant, the risk is not greater than in a young population undergoing the similar procedures," concluded the study authors. "We feel that age alone should not be a contraindication for patients in their eighth decade of life who are incapacitated by their painful spinal deformity."



Source : Beckers Spine , 23rd Sep 2016

Making sense of the male gaze

Irrespective of cultures, male gaze exists everywhere. But how women make sense of it differs depending on their age, experience and physical status. Here’s some interesting insights:

It was Ira Singhal who got me thinking about the male gaze last year. The 2015 batch UPSC topper was making headlines then and over a leisurely three-hour interview – more like chat – for a story, she shared perspective about her life and the journey.

By any yardstick, Singhal has had an impressive journey. She suffers from scoliosis or curvature of the spine. With a hunched back, very short stature and a delicate construct, she walks with an awkward gait. But dare you pity her. She exudes confidence like hell. A topper throughout and a brilliant student, throughout her school she was that bright, well-behaved, almost-perfect girl that other parents wanted their children to emulate. So despite her disability, she said she had a very normal and almost perfect childhood.



1


But there was something i wanted to ask her. And i did. Despite the normal childhood, didn’t she miss something? With physical disabilities, what was growing up like for a teenaged girl when attention from the opposite sex is so important? Singhal was candid. She said she figured out early in life that that was a track she had no future. And with that brutal acceptance, she said, life became easier for her. An age when girls rivalled each other competing for boys’ attention, she was everybody’s best friend and confidant who was not in the race and hence not a threat to anyone.
But there was another kind of gaze that unsettled her. She would walk on the street and strangers would stare at her. Her odd physical construct would draw gaze of a very different kind. But soon she learnt how to deal with that too. Often just a ‘hi’ or a ‘good morning’ with a smile – even to a stranger – would disarm or unsettle them.

Irrespective of cultures and societies, most women have experienced the male gaze at different points of time, in different contexts and at multiple levels. I thought about Singhal and reflected on my experience with the male gaze as i read few pieces analysing the male gaze early this week.

There’s a piece that Jennifer Bartlett wrote for NYTimes.  Bartlett has cerebral palsy. She recalls how in her early 30s she would walk with two friends for their yoga class to a studio in New York. Sometimes they would reach there separately. Her friends would often complain about being harassed or catcalled by construction workers on their way. But Bartlett would often pass that site without any incident. “I was never hit on or sexually harassed by my professors in college, or later, by my co-workers or superiors,” she says in her piece. “I watch men on the street. I will watch a man visually or verbally harass women who pass him. I am invisible enough to do this. Sometimes men look at me, but the reaction is different…. does this mean that I am lucky?…It certainly does not feel that way.”

Bartlett gets the attention in other difficult ways. “On one hand, I know that I am “lucky” not to be sexually harassed…..But I am harassed in other ways that feel much more damaging. People stare….People feel most comfortable speaking about me in the third person rather than addressing me directly. It is not uncommon that I will be in a situation where a stranger will talk to the nearest able-bodied person, whether it be a friend or a complete stranger, about me to avoid speaking to me.”

But here’s what really caught my attention and pushed me to think deeper about the male gaze. She says she understands what it feels like getting the attention from the wrong man. “Its gross,” she says. But then she adds: “But I still would much rather have a man make an inappropriate sexual comment than be referred to in the third person…”

However, Emily Sullivan Sanford offers a counter view in her piece. Sanford was born with achondroplasia, a type of dwarfism. As a teenager she was once asked by a reporter on national television: “So do you think the fact that you haven’t had a boyfriend yet is because of your dwarfism?” In her piece she weighs in on the male gaze and says: “Being told you’re beautiful can feel fantastic. I’ve heard it from both lovers and strangers on the street. But the street version is at best a cheap high compared to the profound and lasting joy generated by someone who’s come to love you more the more they’ve gotten to know you….And is the cheap high from strangers worth the fall that will invariably come from being ignored — or insulted — on a day that you look heavier, older or more disabled? Is the possibility of feeling praised worth the risk of feeling threatened?”

Clearly, women with disabilities offer very different spin to how they make sense of the male gaze.


But how do women at large look at it? Jessica Valenti offers a perspective in a piece she wrote last year . She says when she was younger she would get attention, comments and lascivious stares from men. She says in her piece: “It was miserable. But still, as much as I wish it didn’t, the thought of not being worth men’s notice bothers me. To my great shame, I assume I must look particularly good on the rarer days that I do get catcalled.” As she is getting older she is becoming more and more invisible to men. “To my great shame, the thought of not being worth men’s notice bothers me, even though I’m a seasoned feminist and I know better.”

Do men have a view on the man’s gaze? Dustin Hoffman threw some light on it in this 2012 interview to American Film Institute  on his performance as a woman in the film “Tootsie”.

He says: “I thought I should be beautiful. If was going to be a woman, I wanted to be as beautiful as possible. And [the makeup artists] said to me, “That’s as good as it gets. That’s as beautiful as we can get ya, Charlie.” And it was at that moment that I had an epiphany. And I went home and started crying. Talking to my wife… I said, “I think that I’m an interesting woman when I look at myself on screen. And I know that if met myself at a party, I would never talk to that character because she doesn’t fulfill physically the demands that we’re brought up to think women have to have for us to ask them out.” She says, “What are you saying?” I said, “There’s too many interesting women I have not had the experience to know in this life because I have been brainwashed.”

As a woman, my experiences with the male gaze has evolved with time. When i was in my pre-teens i was naive and innocent. Careless and carefree, it often didn’t even register. I remember one incident around monsoon. The young playful me (may be around 11-12 years of age), who loved getting drenched in the rain, made excuses for some urgent work at home to just step out and enjoy the rain. Clearly oblivious, i was in my own world splashing water when a man (looked like in his 20s), perhaps watching me from the corner paan shop for some time, began to walk alongside and suddenly wanted to hold my hand. I shrieked and was very scared.

By the time I reached college, things changed. Attention from young men on the campus had a positive spin. It was something to be desired. In my 40s, it is different now. Experience and maturity teaches you well how to turn totally blind or ignore the male gaze one does not desire. Age also brings with it enough confidence to take control of the situation if need be. I recall a cab ride where the driver was staring at me through the rear view mirror at a traffic light. All it took a stern “Kuch problem hai kya” (Do you have any problem?) to deal with it.


Source : Economic Times , 26th Sep 2016